Hello Baby, We love you.
You had another great day today. Your 2nd echo-cardiogram came and showed the minor problem with your heart has not been repaired by itself, as we had hoped. So your doctors decided to start you on a medicine that will repair the problem on 80% of preemies with it. Lets hope you fall in that 80%, otherwise you may need heart surgery. I can’t imagine how hard it would be on your 1 lb 4 oz body to have heart surgery. So we are a little nervous, but the doctors don’t seem too worried so that helps. I guess this is pretty common among babies your size. We should know with in a day or two if the medicine is helping. You have not liked your ventilator tube today. You pulled it out or spit it out twice. The nurses stayed calm and reinserted a new tube each time. Your newest seems to be your favorite. They have been able to turn down your oxygen further than anytime so far with this one. They took another x-ray to check your pic line placement. It is up in your neck instead of by your heart. So the nurses are planning on adjusting it soon. Your staff is so amazing. All of these procedures seem so impossible and they keep doing them like its nothing. The amount of talented people here working on you is incredible. We are so thankful.
I had to start back at work today. I was able to go to morning rounds and then I headed to the fire station. It was nice to be back, yet you were never not in my thoughts. I am thankful to have such a great place to work. This was my longest time away from you since you entered this world. I was able to handle it better than I expected. Just because I am away doesn’t mean I don’t love you. I went to work to love you better. I don’t think that’s always easy for children to understand. Mom and I love you. We hope you have another great day. I miss you and look forward to going to see you right after work.